Privacy Policy

Privacy Notice 

Jersey Arthritis Association also known as “JAA”, “we”, or “our”, is registered with the  Jersey Charity Commissioner, with charity number 55. We are committed to protecting the  privacy and security of your personal information. 

This Privacy Notice describes how we collect and use personal information about you during  and after your relationship with us pursuant to the data protection (Jersey) law 2018 (“DPJL”). 

JAA is a "Data Controller", which means we are responsible for deciding how we hold  and use personal information. We are also registered with the Jersey Office of the Information  Commissioner (“JOIC”) – Registration No. 61578. 

We will comply with data protection law, the principles of which says that the personal  information we hold about you must be: - 

• Used lawfully, fairly and in a transparent way. 

• Collected only for valid purposes that we have clearly explained to you and not used  in any way incompatible with those purposes. 

• Relevant to the purposes we have told you about and limited only to those purposes.

• Accurate and kept up to date. 

• Kept your data only as long as necessary for the purposes we collected it.

• Kept securely. 

JAA is accountable to you and the Authorities to show compliance with (“DPJL”) and demonstrate how we are compliant. 

The Data Protection Manager ("DPM") 

We have appointed a DPM to oversee compliance with this Privacy Notice. 

If you have any questions about this Privacy Notice or how we handle your personal  information, contact the DPM at [email protected]. 

You have the right to make a complaint at any time to the JOIC. 

Contact details for these are outlined at the bottom of this Privacy Notice.

The Kind of Information We Hold About You 

Personal data, or personal information, means any information about an individual from which  that person can be identified. It does not include data where the identity has been removed  (anonymous data). 

To explain this to you, we will list our different services when we collect or use additional

information about you. 

How Is Your Personal Information Collected? 

We collect personal information about you when you contact us, engage us to provide a service  or provide use with your data for another specific purpose. 

What information do we collect about you? 

• Name
• Title
• Address
• Telephone Number
• Email Address

What Special Category Data do we collect about you? 

Jersey Arthritis Association do not collect Special Category data from members. We are a charity relating to a  specific condition and offers advice on living with Arthritis related conditions. We do not ask  our members to tell us about their conditions and we do not list conditions against our  member details. 

How We Will Use Information About You? 

We will only use your personal information when the law allows us to.  

Most commonly, we will use your personal information in the following circumstances: 

• Where you have given your consent to us to contact you for a specific purpose, such as  to receive marketing material and updates about JAA services. 

• Where it is necessary for our Legitimate Interests (or those of a third party), your  interests and fundamental rights do not override those interests. An example of this is  when we make contact with family and friends of members and ex-members to . 

We may also use your personal information in the following situations, which are likely to  be rare: 

• In an emergency, it is in your vital interest to share your information when we have it  recorded; an example would be, if there was an incident at one of our meeting or events and we had to provide emergency services with the personal data of people at the  meeting or event. 

Change of purpose 

We will only use your personal information for the purposes we collected it unless we  reasonably consider that we need to use it for another reason and that reason is compatible  with the original purpose.  

If we need to use your personal information for an unrelated purpose, we will notify you and  explain the legal basis that allows us to do so.

 

Data Sharing 

We do not pass on information gained from your engagement with us without a clear legal  basis for doing so. However, we may disclose your Personal Information to meet legal  obligations, regulations, or valid governmental requests. 

We use certain third parties also known as Processors to provide or support our services. We  have appropriate agreements in place with those processors to ensure the safety of your  information. For information on these processors please see the table below. We do not share  your information with any processors for the purposes of direct marketing. 

The current data processors used by JAA are. 

We use Microsoft and Google Drive to process and store our data. We have selected EEA  storage locations for our data, so London and the Netherlands is our preferred data storage  location with One Drive. 

We ensure that your privacy rights are respected in line with this Notice and the same  protection is given to your personal data as laid down by the DPJL. 

Data Security 

We have put in place appropriate security measures to prevent your personal information from  being accidentally lost, altered or disclosed, or accessed in an unauthorised way. In addition,  we limit access to your personal information to those Staff, Agents, Contractors and other third  parties on a need to know basis.  

They will only process your personal information on our strict instructions, and they are subject  to a duty of confidentiality.  

Details of these measures may be obtained from our DPM. 

We have put in place procedures to deal with any suspected data security breach and notify  you and any applicable regulator of a suspected breach where we are legally required to do so. 

Data Retention 

We will only retain your personal information for as long as necessary to fulfil the purposes we  collected it for, including to satisfy any legal, accounting, or reporting requirements.  

To determine the appropriate retention period for personal data, we consider the amount,  nature, and sensitivity of the personal data, the potential risk of harm from unauthorised use or disclosure of your data.

The purposes for which we process your data and whether we can  achieve those purposes through other means and the applicable legal requirements. 

You can request our Data Retention Schedule from our DPM if required. 

In some circumstances, we may anonymise your personal information so that it can no longer  be associated with you, in which case we may use such information without further notice to  you.  

Rights of Access, Correction, Erasure, and Restriction 

The personal information we hold about you must be accurate and current.  Please keep us informed if your information changes during your relationship with us. Under certain circumstances, by law, you have the right to: 

• Request access to your personal information (commonly known as a "data subject  access request"). This right enables you to receive a copy of the personal information  we hold about you and to check that we are lawfully processing it. 

• Request correction of the personal information that we hold about you. This right  enables you to have any incomplete or inaccurate data we hold about you corrected.

• Request erasure of your personal information. This right enables you to ask us to  delete or remove personal data where there is no good reason for us to continue to  process it. You also have the right to ask us to delete or remove your personal  information where you have exercised your right to object to processing (see below).

• Object to processing your personal information where we rely on a legitimate interest  (or those of a third party). There is something about your particular situation that makes you want to object to processing on this ground. You also have the right to  object to processing your personal information for direct marketing purposes.

• Request the restriction of processing of your personal information. This right enables  you to ask us to suspend the processing of personal information about you, for  example, if you want us to establish its accuracy or the reason for processing it.

• Request the transfer of your personal information to another party. 

If you want to review, verify, correct or request the erasure of your personal information, object  to the processing or request that we transfer a copy of your personal information to another  party, contact our DPM at [email protected] 

You will not have to pay a fee to access your personal information (or exercise any other rights).  However, we may charge a reasonable fee if your access request is unfounded or excessive.  Alternatively, we may refuse to comply with the request in such circumstances. 

How to request your information and what we may need from you 

You can use the Data Subject Access Request form, available on our Cookie Banner. If you have  any questions about this process or any of your rights, contact our DPM at  [email protected]

You can also email in your request, make your request over the telephone verbally to one of  our team, whatever way you feel more comfortable with. 

We will need to request specific information from you to help us confirm your identity and  ensure your right to access the information (or exercise any of your other rights).  

We will respond to your request without undue delay, but certainly within Four Weeks after  satisfactory verification of your identity. In some circumstances we can apply an eight-week  extension to this time frame if the request is complex in nature, and it cannot be answered in  the four-week time frame. If this is to happen, we will inform you as soon as possible. 

Right to Withdraw Consent 

In the limited circumstances where you may have provided your consent to the collection,  processing and transfer of your personal information for a specific purpose, you have the right  to withdraw your consent for that specific processing at any time.  

To withdraw your consent, contact our DPM at [email protected] 

Once we have received notification that you have withdrawn your consent, we will no longer  process your information for the purpose or purposes you originally agreed to unless we have  another legitimate basis for doing so in law. 

Changes to this Privacy Notice 

We reserve the right to update this privacy notice at any time, and we will provide you with a  new privacy notice when we make any substantial updates. 

We may also notify you in other ways from time to time about the processing of your personal  information or requesting you to confirm the accuracy of the information we hold on you. 

Complaints 

We want the chance to resolve any complaints you have about how we process your  information. You have the right to complain to the JOIC about how we have used your data. 

The details for each of these contacts are: 

Jersey Arthritis Association  

5 Rue de Maupertuis, Jersey JE2 6NG 

Telephone +44 (0) 1534 720040 or email [email protected] 

Jersey Office of the Information Commissioner 

2nd Floor, 5 Castle Street, St Helier, Jersey JE2 3BT 

Telephone +44 (0) 1534 716530 or email [email protected]